(As told to Raksha Bharadia)
She had an illness and the doctors said she wouldn’t survive very long
At 49, while she was vacationing with her extended family in her birthplace of Lakshmangarh, a small village in Rajasthan, she had a massive brain stroke. The doctors thought it was a migraine attack and for two days she lived in acute pain, made bearable only with high-powered painkillers administered every five hours. Since there had been no history of brain haemorrhage in either side of their family, not one in the assembled 40 people suspected it to be anything as remotely serious as haemorrhage. When on the third morning too, she woke up with the same splitting headache, Mahesh packed for them both and left for Jaipur to fly back to Kolkata. Her condition worsened during the journey and at the Kolkata airport she had to be wheeled out on a stretcher from the aircraft.
She was driven straight to the hospital, where the doctor declared it to be massive brain haemorrhage. The next morning she suffered a paralytic stroke, rendering her entire left side immobile. She lost her speech and the use of her right limbs; 30 per cent of her brain had blacked out. Doctors put her survival chances at less than 20 per cent.
The next two months were spent in the ICU of Woodlands Nursing Home in Kolkata. She silently battled the odds and won every round. Mahesh spent most of his waking hours outside the ICU in the two months. She was brought back home and with it started a series of treatment: physiotherapy, speech therapy, counselling and many others. Their bedroom started resembling an ICU facility with the adjustable bed and all monitoring equipment.
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It began with small steps
She took her first step after four months and seven days and her first word was ‘Ram’ which was what she lovingly called her hubby. Things began to look brighter, the efforts of therapy began to reap results. She had started stringing 6-7 words together, which helped her communicate. Once she even hummed a few lines without breaking up. The human brain is a marvel; while we speak from the right brain, music is processed from the left and so she could hum much better than she could speak.
But unfortunately in the next MRI done six months after the stroke, she was found to have another aneurysm in her brain that needed to be surgically clipped. Mumbai was the preferred choice. She was flown to Mumbai with a slew of family and extended family who filled three full rows in the flight. Bimla was loved, really loved.
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She had surgery
The surgery took close to six hours. The surgeon told him, “An operation is also an injury, though it is a controlled one. Though we have clipped her aneurysm, there has been extensive damage.” He then added, “Mr Killa, my experience says that such patients do not live very long, perhaps two to three years at the most. You see, whatever progress she made on her speech and use of the limbs has now been lost. She has in that sense gone to ground zero.”
“Having lost her speech again, she will find it very frustrating and will be dependent on the understanding of others for every little thing. At first the family members of such patients take immense care, but in time they too lose interest and the patients are left on hired help. This is when they begin feeling ‘unwanted’ and start withdrawing from life.”
Mahesh replied, “None of this will happen to my wife.” I still remember the doctor’s knowing smile, which seemed to say, “I appreciate your love, Mr Killa ‘but such is life’.”
That was 21 years ago.
She survived because she was loved
Bimla is very much with us; happy, wanted and content and yes, she communicates in perhaps not many words, but she manages and we manage. Of course the doctor was right in most of his assumptions. She still cannot say more than three words together, with her right hand paralysed she certainly can’t write and express herself, she needs 24-hour help to perform her basic tasks, and has to swallow more than 20 pills a day, which often leaves her irritable and drowsy. But Mahesh has not allowed her to withdraw from life.
They drive to the park for their morning walks together, though she walks with the nurse at the speed of 750 meters per hour and he covers about six kilometres in the same time. They go to the club every evening and return home at eight for their dinner together, after which they watch their favourite TV shows before they retire to bed. In the 21 years of her ailment he has been away for three days in all. But do I imply that he never loses his patience with her, does not get depressed, at times lose hope? Yes, he does all of those and yet what he creates with his love is far more impressing than his short low phases.
Making her feel wanted
I remember once when I was visiting them in Kolkata. It was six in the morning and they had just finished their meditation. I saw her get up after much difficulty and walk behind the sofa he sat on. He opened the face cream container and held it high so that she could reach in it. She scooped tiny lumps and dabbed it in small measures on his cheeks, forehead, chin and nose. He then lowered the box, shut it tight and rested his head on the sofa head. She gave him a face massage with her one good hand, the left one, while the right dangled lifelessly on her side. The massage lasted a full five minutes. After which the nurse placed a wet cotton swab in her hand and she used it to wipe his face clean. All the while she hummed.
When she was done she said only two words, ‘Ho gaya’. He opened his eyes, looked at me and winked, “Now do you know the secret behind the glow? It is because of the facial I get from your mom every morning!” She smiled at me and asked, ‘Tujhe laga doon?’
Of course I got my tailor-made facial too every morning for the rest of my stay in Kolkata. I read somewhere that like food, water and air, we have another basic need without which we would all wilt and die…the need to feel ‘wanted’.
I read somewhere that like food, water and air, we have another basic need without which we would all wilt and die…the need to feel ‘wanted’.
Not for a moment in these years did Bimla feel ‘not wanted’.
Dear Doctor, yes ‘such is life’ and yet every once in a while someone comes along, pushes our boundary and redefines our understanding of it.